I am sorry about your diagnosis; that’s a tough road to travel.
My son is age 20 and disabled. He can walk short distances, but we push him in a special needs stroller for longer distances or when we need to move quickly. We’ve made about 6 European trips in the past 8 years with him as well as several domestic and Caribbean trips.
Here is what has made our travels easier:
— planning: researching routes ahead of time (Venice: where are the bridges with steps?), figuring out how much walking/stroller-pushing is needed between train station and accommodation and do we just take a taxi, leaving plenty of time between connecting flights, etc.
— allow a ton of extra time for security at the airport. It can be a giant PTA to get a person in a wheelchair through the process. Two weeks ago at JFK, I came through in 3 minutes and my son (accompanied by my husband) took 30 minutes.
— booking assistance on trains: we’ve been doing this more often recently, specifically in England and in Spain. It is an incredible help and stress reduction to have train staff provide assistance to get on and get off the train. They will help with wheeling on/off, luggage, security processing (in the case of Spain), in general making the whole process easier.
— booking accommodations with elevators and step-free access. I use booking.com primarily, which lets you filter for accessibility. Look at pictures carefully and read reviews to make sure the description matches the reality.
— use taxis. Often it’s easier than trying to deal with public transport. Many places will have a local taxi app and you can request a vehicle with wheelchair access.
— city destinations are usually more accessible than rural destinations
— call the airline after you’ve booked your ticket and request special assistance for whatever your unique needs are. Call the assistance number and speak with someone, do not submit an online form (you’ll never hear back). At this point, we fly Delta whenever we can because their special assistance service is awesome. American is also good. Air France is on our “never again” list. Virgin was not great.
— travel slow. Keep destinations to a minimum, transfers take a lot of time and effort. Plan only one or two things per day. Enjoy the downtime; we love our “enforced” slow travel!
You can do this…. Good luck, and I hope you are able to continue with your travels.