I’ve been recovering at Hotel Roombach for 5 days now. Our days have taken on a routine. Wake-up, shower, shot to prevent thrombosis, breakfast, walk around for a few minutes outside, breathing exercises with my little lung toy that moves 1-3 balls up a tube, more walking in the room or up and down the hall, watching some Prime Video now that I can get a strong signal, more walking and breathing exercises, lunch in the room (finally some good Hungarian food!), FaceTime calls with my sons and granddaughters, more walking and breathing exercises but with less gusto as my energy is fading, and then a carton of yogurt for dinner and an 8pm bedtime.
The anti-thrombosis shots are kind of funny. My husband’s face when the doctor told him that I needed a daily shot…wish I had my camera with me. The first morning he gave it to me, he washed his hands, had me pinch a fat roll on my stomach (note to self: lose 30 lbs), sprayed the area with antiseptic, and threw a hand towel over my head! “Why did you throw a towel over my head?” Him: “I don’t want you to watch me giving you the shot”. Hey, whatever works.
I’ve learned that pain in Hungary is not viewed as something that is supposed to be extinguished to zero, as it is in the US. I was discharged with two prescriptions: the anti-thrombosis shots, and a medication for phlegm (sort of like Mucinex). No pain meds. Four days after major surgery. My pain is tolerable. 24/7 feels like I am wearing the sports bra from hell that is 2 sizes too small. Every now and then, a gremlin that lives inside my chest turns on a blow torch, which causes me to pause and breathe through it. Prior to surgery, Dr. V told me to expect a 3-4 month recovery. Now I get it.
I’ve put TraveTexasMom and Mister É to work. Yesterday I felt brave enough to walk 8 s-l-o-w minutes to Oyshu, a store recommended by TTM where I could buy some soft camisole/tank tops to wear under my clothes. Wearing a regular bra is excruciatingly painful with the already “bra-from-hell-feeling”, plus I have 4 really sensitive incisions under my right arm. Got a couple tank tops, plus a super baggy sleep shirt and baggy long-sleeve shirt since it’s getting colder. Mister É found a place that sells compression socks nearby, because Dr. V is worried about thrombosis on the flight home. My husband will head there tomorrow.
Also on the agenda for Monday is getting my Hungarian medical records (we have paper copies) translated to English. In true, US red tape style, my primary care physician says she can’t get a referral to a pulmonologist until she has my medical records from Hungary. I get it, but I’m also having a little temper tantrum about it. It’s hard not to compare the “We’re here to taking good care of you” response I received in Hungary to the “We have to check all of these boxes first before we will take care of you” response in the US.
Later this week I have an appointment on Tuesday with Dr. V for another check. There was a Lindt chocolate shop a couple of doors down from the clothing store so we stopped in to fill a big bin with chocolates that we are going to give to the nurses. And we also hope to visit A(72) who, most likely, is still there. I know that she misses fresh air the most. We can’t take her outside, but are hoping some fresh flowers will cheer her up. If everything looks good on Tuesday, we are supposed to return on Friday, October 20 so Dr. V can remove the sutures, and then -hopefully- I will be cleared to fly home.